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Apr 13, Petra Eggs rated it really liked it Shelves: What do you think the worst things to tolerate would be if you had locked-in syndrome and could not communicate at all with people who did not even realise you had cognitive function? Unseasoned food, too-hot coffee fed through a straw and being positioned with his testicles trapped under him in his wheelchair. Also that having to watch Barney loving everyone on the care home tv was driving him mad.
The author fell into a vegetative state at age 12 and started to come round at 16, but it was no What do you think the worst things to tolerate would be if you had locked-in syndrome and could not communicate at all with people who did not even realise you had cognitive function?
The author fell into a vegetative state at age 12 and started to come round at 16, but it was not until he was 19 and a carer realised that he was conscious and listening to her that tests and eventually communication devices made a return to a relatively normal life possible.
The author is still in a wheelchair and still uses a computer to speak, but he is married and works at a high level in computers. What stands out about the book, is the author's detailing of the abuse, especially the sexual abuse he received from women carers who used his body to satisfy themselves in perverse ways secure in the knowledge he couldn't tell anyone. There are also incidents of violence, such as when the author was given an enema so violently he bled copiously.
He continued bleeding into the bath he was given. The carer dipped his toothbrush in this bloody, fouled water and brushed his teeth with it. Every week there are stories of children in care homes and vulnerable adults in old age homes being physically, violently abused.
I never imagined that women would sexually abuse teenage boys with presumed no mental capacity though. The book isn't really that interesting. The story is not unique, but the author is, so three stars for the book, but one more for the author for overcoming everything including total illiteracy, to write it.
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Only Virna touches me for no other reason than to soothe my aching body - she comforts and heals, making me feel like something other than the repulsive creature I know I am. This book is horrifying on many levels. When Pistorius was 12, he came down with an unknown illness that trapped him inside his own body. Within a few weeks he became paralyzed. Unable to speak or move, Pistorius was a prisoner.
Put into a day-home with people with an I. Imagine being able to hear and understand everything that's being said in front of you, but being unable to speak. And being thought of as an "imbecile" who has less intelligence than a toddler.
Pistorius lived the nightmare for over a decade - in a wheelchair, at the mercy of caregivers, and spending hours of every day just staring at the wall.
It wasn't until a caregiver with a kind heart, Virna, started noticing that Pistorius might be aware inside his body and pushing his family to get him tested so that he could find a way to communicate with the world once more.
People project whatever ideas they want on the physically passive and silent Pistorius. And he has no way of correcting them.
I remain in so many ways a blank page on to which they write their own script. If only they knew of the gnawing anxiety, fiery frustration, and aching sexual desire that course through my veins at times. I'm rating this so high mostly due to it being a touching and amazing story.
A true story and a real one about a very horrifying situation and how this man was lucky enough to relatively break free from his hell existence. However, it was not amazingly well-written and it's obvious Pistorius's strengths lie with computer programming and engineering, not in being a natural-born author.
Abuse Pistorius has some sadistic caretakers and there is a graphic chapter about this which may be too traumatic for some readers. Rape Pistorius is raped and sexually abused by certain female caretakers. This is graphically described in one chapter and may be too traumatic for some readers. Tl;dr - An amazing true story. At times funny, at times terrifying, at times touching - this book ends on a positive note and is overall an uplifting story.
But it doesn't gloss over the darkness, terror, rape and abuse that Pistorius experienced. It's also very Christian as Pistorius turns to God for comfort and aid. Not the most well-written book I've ever read, but definitely worth reading, IMO.
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Ghost Boy: My Miraculous Escape from a Life Locked Inside My Own Body
The beginning of Martin's story is one of horror, but it evolves to be one of great triumph and growth. I loved his story of how he goes from someone who believes himself to have no future to someone who now has a bestselling book, his own business, and is expecting a child.
This book was also a great exploration of people with non-verbal disabilities and how dehumanizing it can feel, so it really expanded my sympathy and made me more conscientious of people whose lives are like Martin's.
The audiobook for this was fantastic and I would recommend it as long as you can handle sensitive subject matter about abuse. View 1 comment. Between the age of 18 and 20, his mind slowly but steadily resurges, while his body remains totally unresponsive to his will.
Als ich unsichtbar war : Die Welt aus der Sicht eines Jungen, der 11 Jahre als hirntot galt epub
To the world, including the people caring for him and even to his family, he still seems the lifeless body without a brain or any intelligence. While Martin himself does not remember being the once-normal 12 year old, he does feel that the way he is being treated and occupied or not is unsuitable: Not to mention the people who consider him solely an object of their perversion as they abuse and mistreat him.
Over many years of training and patience and while showing a high degree of intelligence, will power and motivation, he manages to lead a life as normal and happy as he could possibly hope for ever since his awakening.
View 2 comments. However much I tried to beg and plead, shout and scream, I couldn't make them notice me. I was invisible. The ghost boy.
When Martin was 12, he became sick. The doctors didn't know why. Within 18 months he was a 'vegetable' A couple of years went by, and he began to slowly 'awake'.
But no one noticed She's the real heroine of this story. Had it not been for her, I would probably either be dead or forgotten in a care home somewhere. Then the rest of his life began. Finally, he had a way out of the silent world. Things began to happen. A wife. A business. Good stuff. Just a warning for those who would appreciate one Sexual abuse. Physical abuse. Emotional abuse. He is very open, honest, and lays it all out there. Oct 29, Sal Noel rated it it was amazing.
If you work with people with disabilities- specifically Profound and Multiple you really should read this book. I came in at the end of an interview on Radio 4 with the author, and noted down the title.
I tend to buy books almost by chance- quick read of the blurb, or a writer I already know. I went out that week to buy this book. The story is remarkable. Imagine coming round and having lost part of your life and not being able to communicate.
Not saying when you were uncomfortable, being spoken If you work with people with disabilities- specifically Profound and Multiple you really should read this book. Not saying when you were uncomfortable, being spoken across, never being asked your opinion, not being able to make choices. Luckily, when Martin was in this state, his aromatherapist notices that some movements may not have been random and after some time he is assessed and appropriate communication devices are offered to him.
I really need to read it again and I did speed read it and have since lent it out. Totally inspiring and reconfirmed my practice when teaching PMLD students. Highly recommended. Die Geschichte war alles in allem sehr schockierend, ergreifend und interessant, auch wenn ich die ein oder andere Stelle als ein wenig langwierig empfunden habe.
Feb 17, Elaine rated it it was ok. I was so eager to read this book, the story sounded amazing. Unfortunately it was poorly written. I was actually bored at some of the rambling and skipped through pages and pages. The "characters" were real people, they should have been "developed" more. I didn't really feel a connection to any of them, except Martin.
I truly don't understand the 4 and 5 star ratings. I think they are based on the idea of the story, not the book itself. View all 6 comments. This is a heartfelt and moving story. Don't let the three stars mislead you; this will pull on your heartstrings and make you appreciate just how much we take it for granted that we can verbalize our communications. Nevertheless, the promo information misrepresented the nature of the story and made it seem like Martin was completely unable to communicate or let anyone know that he was conscious at all.
Second, the narrative framing is somewhat hard to follow. Events are presented out of sequence This is a heartfelt and moving story. Events are presented out of sequence and often without dates, so it's tricky to follow a sense of progression as Martin recovers and regains some control of his life.
So, in the end, I'm torn: I leave it to you to decide what that's worth in terms of a rating. For me, I think I'll split the difference here.
Feb 14, Marianna rated it it was ok. What a wonderful story that was so poorly written it was sad. This had the potential to be a great story, perhaps even an important story, but the crafting of this story made it seem uninteresting and mundane.
The publisher should have hired someone to write this. View all 7 comments. Mar 18, Ashleigh rated it it was ok. I'm not going to rehash the plot, because it's already been done, so I'll get right to my review of the book. I give Martin Pistorious a lot of credit for not only surviving a devastating illness, but thriving despite it. His story is remarkable and inspiring. However, the editing and sequencing of the events in the book caused me knock a few stars off of my rating.
The chapters skipped from one year to another in no sequential order, and no dates were given so I couldn't begin each section of t I'm not going to rehash the plot, because it's already been done, so I'll get right to my review of the book.
The chapters skipped from one year to another in no sequential order, and no dates were given so I couldn't begin each section of the book knowing the time-frame.
While I understand that many authors of biographical novels take this approach and provide flashbacks during the course of the book, Pistorious's method was ineffective and diaorganized. If readers can look past the structure of the book, it is an enjoyable and inspiring story about a person who survived insurmountable odds. View all 3 comments. Feb 19, Kirsti rated it it was amazing. Sometimes you find those remarkable life stories that are almost too awe inspiring to be true.
This is the case with this book. Martin has to overcome extraordinary odds in order to be able to write this book, and faces deep personal issues outside of his illness before he can accept who he is and the love of an equally extraordinary woman.
I loved this personal account, and I loved the way this book was written between times because it made the reality of his illness always at the forefront.
A Sometimes you find those remarkable life stories that are almost too awe inspiring to be true. A five star work, you couldn't want more from an autobiography than this stunning honesty. View all 4 comments. Jan 15, Mary Jo rated it it was amazing. Great story for everyone to learn more about augmentative and alternative communication. A must read for speech therapists and special educators.
I read this after hearing about Pistorius's story on "Invisibilia," and I'm torn on reviewing the book. On the one hand, the story itself is unbelievably gripping and fascinating.
I also do believe, strongly, that it's crucial that he got to tell his own story, after so many years of silence. That said, I felt like I would rather have read a really good third-person nonfiction account of the whole thing. Like a Laura Hillenbrand book, or something along the lines of The Immortal Life of Henriett I read this after hearing about Pistorius's story on "Invisibilia," and I'm torn on reviewing the book. I just felt like there were so many fascinating stories and perspectives that weren't explored here, and I think sometimes you aren't the best person to tell your own story, even if it's important that you do so and even though it is YOUR story.
Elegant, literary writing can be truer than first-person exposition because it recreates emotions rather than facts. Still, Pistorius is a competent if not an artistic writer, and the book does get much stronger after an inconsistent beginning he doesn't seem to know how to handle the back story of his illness that he can't remember himself - if I hadn't heard the podcast first I think I'd actually be incredibly confused about what happened before getting a bit maudlin at the very end.
Definitely worth listening to the "Invisibilia" episode at the very least and then reading this if Martin's story piques your interest, as it did mine.
I can't describe how honest and dear this story is, how I laughed through tears, cheered quietly, mourned, happily sighed, and came to an unlikely empathy with Martin Read it. Buy it and share it. It's too good to check out of the library, because you'll want it on your shelves. But I hope all libraries find this book and add it to their collection! Mar 09, Rebecca McNutt rated it it was amazing Shelves: This book is one of the most amazing true stories I've ever read. Imagine seeing your entire family fall apart?
Imagine being left behind at a full-time care facility to be watched by nurses and doctors all the time? Imagine being trapped in your own mind?
But escape was possible for the author of this unforgettable memoir. Ghost Boy is a story about reclaiming life and beating the odds, but it's also about the rest of the author's family and how they coped with the diagnosis that their son was This book is one of the most amazing true stories I've ever read. Ghost Boy is a story about reclaiming life and beating the odds, but it's also about the rest of the author's family and how they coped with the diagnosis that their son was given back at the time.
Nykyisin Martin on naimisissa ja kulkee luennoimassa vammastaan puhesyntetisaattorin avulla. Jun 21, Jen rated it really liked it Shelves: I'm going to go with 4. It IS a worthy book to read though. It's the story of a man who was basically "locked in" to his body after a mysterious illness made him comatose, then in an awakened state, but where he had no control over his body or speech.
For years. I give this man credit, he did NOT go insane or will himself dead, though he did come close. He went through some horrific, but not horribly graphically described, mal-treatment and abuse at the hands of those who were supposed to be helping him, but from helping hands he really did receive help. One of those staff members saw the spark of awareness in him and helped him to bring it out so others would know he wasn't just a body with the mind of the eight year old he was when he got sick.
The only thing I wish was gone into was if justice was ever done to those who hurt and abused him and undoubtably others. Not necessarily legal justice, as what happened to him couldn't be proven so late in time, but to at least prevent them from hurting others.
And for legal justice if they could be proven to be currently hurting others in their care. I didn't need much, just something saying that he and his family notified the authorities and that the authorities were looking into the allegations. The story ended on such a happy, gentle, positive note. Seriously, if you think you have problems, read this book. It'll both cure you and make you see that if he can work and get to where he is today, then we can too, especially if we have less holding us back.
This man and his lady are an inspiration to us all. And it is an important lesson for all. Just because a person can't speak or control the movements of their body doesn't mean they are dumb or aren't there. They can hear, think and feel. So important for some people to learn. Me included in that I tend to not know how to deal with those not like myself. The simple answer is, "like you want to be treated, dumbie! I guess I'm self conscious and don't want to come across as an idiot, so I don't say anything or make eye contact to be fair, I'm not big on eye contact with my own friends and family, so I'm not trying to be rude, but I have to make an extra effort to do so.
Yay shy. So this book has gone quite a way to waking me up that it's not all about me. Get over myself and just be ME with another person. Again, toss shyness in the mix and it can be a challenge, but really, if Martin can do what he has done, I think I can get over my self-doubt and be a decent human being to others. I highly recommend this book to everyone, YA and up I would say. Nothing too horrible in it, but he does go into his abuse and it may be a bit much for those Middle Grade and below.
Trigger warning, there is sexual abuse mentioned. Not graphic, but it is there. Sep 19, Diane V-R rated it really liked it Shelves: First he lost his voice and stopped eating; then he slept constantly and shunned human contact. Martin's parents were told that an unknown degenerative disease had left him with the mind of a baby and he probably had less than two years to live. Martin went on to be cared for at centres for severely disabled children, a shell of the bright, viva "In January , aged twelve, Martin Pistorius fell inexplicably sick.
Martin went on to be cared for at centres for severely disabled children, a shell of the bright, vivacious boy he had once been. What no-one knew is that while Martin's body remained unresponsive his mind slowly woke up, yet he could tell no-one; he was a prisoner inside a broken body. Then, in , when Martin was twenty-three years old, an aromatherapy masseuse began treating him and sensed some part of him was alert.
Experts were dismissive, but his parents persevered and soon realised their son was as intelligent as he'd always been. With no memory of the time before his illness, Martin was a man-child reborn in a world he didn't know. He was still in a wheelchair and unable to speak, but he was brilliantly adept at computer technology. Since then, and against all odds, he has fallen in love, married and set up a design business which he runs from his home in Essex.
I thoroughly enjoyed this book and Martin's searingly honest recount of his life trapped within his body. Martin's enthusiasm is infectious and you cannot help but be inspired by his story and attitude. Jan 15, Abbass Maanna rated it it was amazing. An overwhelming, heart-breaking true story of Martin Pistorius.
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